Madilynn’s been trying to take little independent steps here and there around our house, and every single one of them feels like a victory, like something we’ve thought about but didn’t think of our reality 🙌 They aren’t big or fast, and they don’t always look great (hence why I moved her back to the start 😆) but they’re hers. Some days she surprises herself with how far she can go, and other days she’s mad her body can’t do more. I stand close, not to rush her or take over, but to remind her
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Madilynn’s been trying to take little independent steps here and there …
514 views1 week ago
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Climbing takes her time, focus, and a lot of determination. And it also takes patience from the world around her. When kids are given the space to move at their own pace, something really special happens: understanding grows, empathy grows, and inclusion becomes natural. Thank you to the parents who teach their children to wait, to notice, and to cheer instead of rush. Those small lessons make spaces like playgrounds safer and kinder for everyone 💛 #sca5 #ataxiaawareness #disabilitypride #inclu
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Climbing takes her time, focus, and a lot of determination. And it also t…
177 views1 week ago
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Part 2 of the Epic Battle of the Super Suit✨This time, she was staying strong on her opinions and not having ANY of my reasoning. Just a very strong, very loud “no” on repeat 🫠 Because the truth is, we do ask more of her than most kids. She has to make decisions about her body that other children her age don’t even have to think about. And honestly… that’s not fair. But two things can be true at the same time…she can be tired of it, frustrated by it, and still be one of the strongest kids I kno
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Part 2 of the Epic Battle of the Super Suit✨This time, she was staying s…
219 views1 week ago
FacebookMightymadilynn
Throwback to Madilynn’s first day of school at her new school. New places are often scary for her, but more so for us as parents. Letting go, allowing others to care for her, and trusting that we have given her loud enough of a voice to stand up for herself are all things we’ve had to do when we moved across state lines to a community that we knew no one in. Connor missed her so much and COULD NOT WAIT to see his best friend. Although they fight like cats and dogs some times, they truly are the
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Throwback to Madilynn’s first day of school at her new school. New pla…
1K views2 weeks ago
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When accessibility is built in, inclusive play just happens. No explaining. No asking. Just kids playing together 🤍 #inclusiveplayground #sca5 #disabilitypride #ataxiaawareness #spinocerebellarataxia | Mightymadilynn
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When accessibility is built in, inclusive play just happens. No ex…
1 week ago
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Madilynn on Instagram: "When Ryan and I started this Instagram account, we didn’t do it for the numbers. We did it because we remember so well the days after Madilynn’s diagnosis was finally confirmed to be a lonely, depressive state of mind. Not because we were mourning the life we thought we would have, but because everything we saw online was so negative and all signs pointed to a terminal diagnosis after years of regression 😢 This is what the rare disease community deals with on a regular b
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Madilynn on Instagram: "When Ryan and I started this Instagram accou…
5.3K views2 weeks ago
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Madilynn on Instagram: "A quick chat about Madilynn’s AFOs, featuring Madilynn & her brother Connor ❤️ They play a big role in her learning to walk, but they’re not a magic fix. They come with challenges, extra effort, and a whole lot of strength. Sharing this because understanding matters — especially for kids like her. Sorry for the camera angle - we’re still new at this whole influencer thing 😂🤷‍♀️ #sca5 #disabilitylife #anklefootorthosis #ataxiaawareness"
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Madilynn on Instagram: "A quick chat about Madilynn’s AFOs, featu…
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Found this video from last month where Madilynn is taking small bu…
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Madilynn on Instagram: "Right now, she’s learning to walk with hand c…
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Madilynn on Instagram: "Learning doesn’t follow a timeline when it c…
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