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Le plus beau cadeau de Noël : il marche enfin !
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Johnson’s on Instagram: "If you’ve never heard of STXBP1… this is your sign to learn 🧬 STXBP1 is a rare genetic neurological disorder that affects how the brain communicates with the body. It often impacts movement, development, and can cause seizures. For kids like Mila, nothing comes automatically. Every movement takes effort. Every milestone takes time, repetition, and a lot of therapy. But STXBP1 doesn’t define who she is. She feels joy. She recognizes love. She tries every single da
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Affection from Logan and Thomas is few and far between. So when it happens on their terms, it feels huge. Tonight Logan reached for his dad… a couple hugs, a little cheek pinches, and just like that our hearts melted. Moments like this are rare and monumental. These are the moments we crave. The ones we hold onto. The ones that remind us that connection is there, even if it shows up differently. I only wish there were more of them. I pray they keep coming💙 #specialneeds #reels #stxbp1 #momsofti
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Johnson’s | Will she ever walk? ❤️‍🩹 Mila has a rare neurological disorder called STXBP1, which affects how her brain communicates with her body.... | Instagram
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