As I entered middle age, what I thought was normal aging turned out to be undiagnosed CF — a realization that reshaped everything from daily treatments to my understanding of my family’s health ...
On behalf of the nearly 40,000 individuals living with cystic fibrosis in the United States, we write to provide public comment on the Institute for Clinical and Economic Review’s (ICER’s) assessment ...
The U.S. Food and Drug Administration has approved the use of ivacaftor (Kalydeco®) for children as young as 6 months. The U.S. Food and Drug Administration (FDA) has approved the use of ivacaftor ...
The year I turned 40, I celebrated for a week with my dearest friends and family and tried to feel grateful. The life expectancy of a person with cystic fibrosis was just 10 years at the time I was ...
I did the research. I asked the questions. I thought I knew what to expect when I had a double-lung transplant. I was surprised by what I learned. During the 18 months I spent waiting for a ...
New modulators in development by the CF-specific company could provide unique treatment options for the underlying cause of cystic fibrosis for many people with the disease BETHESDA, Md. — The Cystic ...
Food insecurity is a long-standing problem in America. According to the U.S. Department of Agriculture (USDA), food-insecure households are those with “limited or uncertain access to adequate food.” ...
Our family’s journey has been a rollercoaster of challenges and triumphs since we welcomed our goofy boy, Owen, into the world. Now 20 months old, Owen’s life has already been marked by medical ...
I've been thinking of my life after Trikafta as a series of pros and cons ... like on “Friends” when Ross made a list to figure out why he should/should not date Rachel. Ross needed to decide if he ...
Dr. Yonker is a pediatric pulmonary physician-scientist, committed to improving the care of children with cystic fibrosis. Since the outset of the COVID-19 pandemic, she has led the Pediatric COVID-19 ...
Blue skies and energy from the sun's radiant heat nourished my body. I soaked in the rays outside my home in Lancaster, Ohio, fielding calls and messages from all over the world. People wished me well ...
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