Bubble baths and pedicures weren't helping columnist Betty Vertin de-stress, so she's taking her self-care plan back to the basics.

In a first-in-human clinical trial, a gene therapy was found to improve swallowing ability for people with oculopharyngeal ...

While making plans for his life after his 31st birthday, columnist Shalom Lim had his first advance care planning meeting.

For columnist Betty Vertin's 19-year-old son, Chance, becoming a caregiver to his brothers has benefited the entire family.

Struggling with increasing leg weakness due to FSHD progression, columnist Robin Stemple turned to what he calls the "knee ...

Choosing assistive equipment for a neuromuscular disease patient starts with understanding goals, environment, and needs, ...

Two interconnected themes — community and hope — dominated conversations at this year's MDA Engage symposium in Dallas.

Since I was 6 years old, I’ve been living with the impact of having Duchenne muscular dystrophy. When I was a kid, I loved building with Legos. I liked taking things apart and figuring out how to put ...